Public Dissemination Policies

Owned by Maryam Abdallah
Nov 21, 2024
2 min read

Please refer to All of Us Researcher Publication, Presentation, and Poster Checklist prior to plans to disseminate.

Data and Statistics Dissemination

Under the All of Us Data and Statistics Dissemination Policy:

  • No participant count of 1 to 20 can be published or distributed directly (a count of 0 is permitted); and

  • No data or statistics can be reported that allow a participant count of 1 to 20 to be derived from other reported cells or information, including in text, tables, or figures. This includes the use of percentages or other mathematical formulas that in combination would allow an individual to deduce a participant count of less than 20.

  • This policy permits data users who wish to report data or aggregate statistics that correspond to fewer than 20 participants to obscure these values using scientifically accepted strategies, including collapsing data across cells, coarsening data, or cell suppression.

Publication and Presentation Policy

Below are some key points from the Publication and Presentation policy.

  • Contact User Support in your Researcher Workbench account and submit a Publication and Presentation Reporting Form to inform the program of any upcoming publications or presentations resulting from the use of All of Us Research Program data (including peer-reviewed manuscripts or conference abstracts) at least two weeks before the date of publication or presentation.

  • Submit an electronic version of a final, peer-reviewed manuscript to PubMed Central immediately upon acceptance for publication, to be made publicly available immediately without any embargo period. Your manuscript will not go through any program review.

  • Honor the contribution of those who take part in All of Us to the research project’s work through an acknowledgement statement in any oral and written presentations, disclosures, and publications resulting from any analyses of the data. The following is an example:

    • “We gratefully acknowledge All of Us participants for their contributions, without whom this research would not have been possible. We also thank the National Institutes of Health’s All of Us Research Program for making available the participant data [and/or samples and/or cohort] examined in this study.”

 

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